The "What's on your mind?" Thread -2017

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kashmir64

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Your great-grandfather may have started a Lutheran congregation but he did not help start a religion. There were plenty of Lutheran congregations scattered all over the Northern states like Michigan or Wisconsin.
Ok, off my soapbox.
So I said it wrong. He was one of the first to spread the religion in the U.S.
 

dahli6

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I remember being 18. It was not fun. Fortunately, as long as you don't get yourself killed you can grow out of it; I suspect that the time when your son grows out of it can't come too soon for you.
I really did focus on personal responsibility years before my kids turned 18 but once they turned 18 at least I was no longer legally responsible if they screwed up. That being said, I won't kick them out of the house either. Both are working, building credit, saving money, etc. I thought I wouldn't survive their High School years. Especially my son.
 

arouetta

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I have no idea why I ceased getting email notifications of new posts. I actually thought the thread was dead.

W Willowy I'm glad your brother got a diagnosis. There are lots of advantages to getting a diagnosis as an adult. First, you qualify for vocational services. Second, it removes the whole guilt thing of "Well if I tried harder I could be just like everyone else" because you have absolute proof that your brain doesn't work like everyone else and some things can't be just willpowered out. Third, it gives you a direction and a path for facing the challenges head on and work on compensating, you don't just flounder about.

dahli6 dahli6 I'm glad your daughter emerged from school relatively unscathed, but you really should have told the school in order to get all the protections of the IDEA. I also know that while my daughter did get a heavy focus on speech therapy, she got tons more interventions than just help with social situations and they focused on breaking routine, not strengthening the over-reliance on routine that kids with autism have. And they did have that sort of diagnosis in the 70s and 80s, autism was discovered in 1943 and Asperger's was discovered in 1944. (They originally would have likely been the same diagnosis except for the teeny matter of a world war happening at the same time.) And the initial test subjects for autism were adults who weren't severely impaired and had received the wrongful diagnosis of childhood schizophrenia; Kanner's notes showed that the adults were greatly relieved to have this new diagnosis, which shows the power of an adult diagnosis.

@tallyollyopia Whatever happened at work, I'm sorry. Maybe a bubble bath by candlelight with a glass of sparkling wine or sparkling grape juice or Martinelli's might help with calming down?

@amysuen Every time your son causes a new gray hair, just remember that this shall pass, and you will have your revenge by loading his future kids up with sugar and sending them home.

@everyone You all can have all the kittens. When they get to where their ears stand up and they can walk without wobbling they cease being cute to me and all I can think about is the wanton destruction they cause. Strangely enough I feel the same about babies, once out of the newborn stage they stop being cute to me and all I see is puke, poop and destruction. I'll take the cats back once they hit 2 years of age.
 

arouetta

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And....I forgot the reason I came here to post when I saw all the posts I missed.

I am very low on work clothes at the moment, but I've gotten my hands on bottoms that are more ivory than khaki and now I've got the right color of Rit Dye. I'm going to hit up Goodwill tomorrow for more bottoms, since now I can buy completely white ones and then throw everything in the wash with the dye. But I have a question about one of the bottoms that's pretty close to ivory I already have.

The material felt very strange when I was hemming the legs to my length, almost like a tablecloth, so I looked at the label. It's 45% cotton and 55% linen. I've never worn anything with linen fibers before in my life. Is this something I should throw in the dye bath, or should I leave it the original color and make it a daily wear instead of work wear?
 

Willowy

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And they did have that sort of diagnosis in the 70s and 80s, autism was discovered in 1943 and Asperger's was discovered in 1944.
Yeah, but I don't think they were commonly diagnosed. My dad's parents decided something was wrong with him so they dragged him to every child psychologist they could find, and they did all kinds of strange Freudian things to him that he doesn't like to talk about (one thing he did tell us---they decided that, because he never crawled as a baby, he missed out on something necessary, so they made him crawl everywhere for a month), and they basically came to the "diagnosis" of "we dunno, he's weird we guess". And he's super classic Aspie so you'd think they would have figured it out.

@everyone You all can have all the kittens. When they get to where their ears stand up and they can walk without wobbling they cease being cute to me and all I can think about is the wanton destruction they cause.
Haha, I feel the same way about puppies. Give me a 2+-year-old dog any day. I don't feel like that about kittens though. Maybe because they're potty-trained and don't chew the furniture (maybe they'll chew your cell phone cord but you probably aren't going to find your couch in pieces if you leave them alone for an hour).
 

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Just so you know:

Don't forget Feral Cat Day, Black Cat day or National Cat Day. Put a circle around National Chocolate Day!

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arouetta

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Yeah, but I don't think they were commonly diagnosed..
It was harder to get a diagnosis then. Early on, I think the 1950s, it was thought that people with autism simply couldn't get better. So that started a pendulum swing where doctors thought saying it was autism meant that nothing could be done, little better than a death sentence, and started reserving the diagnosis for the worst off. 1970s, Kanner's original subjects that he used as a criteria for autism would likely not have been diagnosed with autism. Mid to late 1980s or so desperate parents just tried everything and some stuff worked. Temple Grandin did a lot for getting that going. The DSM revision that came out in 1994 changed the likely prognosis from it doesn't get better except for a few spontaneous cases to with lots of early intervention it can get better, in recognition that the cases that got better weren't random, they were the ones that had a lot of experimental interventions. That started the pendulum swinging in the other direction, to where doctors followed the criteria more closely and did start using the diagnosis of autism for milder cases.

When my daughter was diagnosed in 1996, it was with PDD-NOS. I was told that as low functioning as she was, her social skills just weren't bad off enough for an autism diagnosis. This was a child whose level of function was so severe she could not communicate, she actually fought off socialization instead of passively ignoring it, and her ability to function as a 2 year old tested at mental retardation level. 2000, she was a lot better, early intervention worked wonders. She was very childish and immature, self-help wasn't even at a pre-teen level, but she communicated (to clarify, she never shut up), she was actively trying to make friends, was mainstreamed with a not unreasonable level of classroom accommodations, and her grades reflected her IQ of 120. We had reason to get a full psych eval done, and her diagnosis changed to autism. This is a perfect example of the change in mindset in the medical field. The diagnostic criteria had not changed between the DSM-4 that came out in 1994 and the DSM-4R that came out in 2000. It was identical, but it was being applied differently.

While I am glad that the milder cases are being diagnosed appropriately, as that means there's a proven road map of standard therapies that can be applied and insurance will pay for it, I sometimes wonder if maybe the pendulum has swung too far. Back when my daughter was diagnosed I was told you had to rule out everything else as there's no direct test for autism. My daughter had to have an EEG to rule out Landau-Kleffner syndrome and a genetic test for Fragile X and a hearing test to rule out partial deafness and a full psych eval (not the one done in 2000) to rule out mental illness and other neurological and developmental disabilities and probably more tests that I've forgotten. But I now hear that a firm diagnosis of autism is now made by regular pediatricians using a checklist. That sounds like a perfectly healthy kid with a few social difficulties having a bad day could get a diagnosis. The equivalent I can think of is a family doctor using a checklist to definitively diagnose epilepsy without an EEG or using a checklist to definitively diagnose a heart attack without ever having an EKG done.
 

dahli6

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It was harder to get a diagnosis then. Early on, I think the 1950s, it was thought that people with autism simply couldn't get better. So that started a pendulum swing where doctors thought saying it was autism meant that nothing could be done, little better than a death sentence, and started reserving the diagnosis for the worst off. 1970s, Kanner's original subjects that he used as a criteria for autism would likely not have been diagnosed with autism. Mid to late 1980s or so desperate parents just tried everything and some stuff worked. Temple Grandin did a lot for getting that going. The DSM revision that came out in 1994 changed the likely prognosis from it doesn't get better except for a few spontaneous cases to with lots of early intervention it can get better, in recognition that the cases that got better weren't random, they were the ones that had a lot of experimental interventions. That started the pendulum swinging in the other direction, to where doctors followed the criteria more closely and did start using the diagnosis of autism for milder cases.

When my daughter was diagnosed in 1996, it was with PDD-NOS. I was told that as low functioning as she was, her social skills just weren't bad off enough for an autism diagnosis. This was a child whose level of function was so severe she could not communicate, she actually fought off socialization instead of passively ignoring it, and her ability to function as a 2 year old tested at mental retardation level. 2000, she was a lot better, early intervention worked wonders. She was very childish and immature, self-help wasn't even at a pre-teen level, but she communicated (to clarify, she never shut up), she was actively trying to make friends, was mainstreamed with a not unreasonable level of classroom accommodations, and her grades reflected her IQ of 120. We had reason to get a full psych eval done, and her diagnosis changed to autism. This is a perfect example of the change in mindset in the medical field. The diagnostic criteria had not changed between the DSM-4 that came out in 1994 and the DSM-4R that came out in 2000. It was identical, but it was being applied differently.

While I am glad that the milder cases are being diagnosed appropriately, as that means there's a proven road map of standard therapies that can be applied and insurance will pay for it, I sometimes wonder if maybe the pendulum has swung too far. Back when my daughter was diagnosed I was told you had to rule out everything else as there's no direct test for autism. My daughter had to have an EEG to rule out Landau-Kleffner syndrome and a genetic test for Fragile X and a hearing test to rule out partial deafness and a full psych eval (not the one done in 2000) to rule out mental illness and other neurological and developmental disabilities and probably more tests that I've forgotten. But I now hear that a firm diagnosis of autism is now made by regular pediatricians using a checklist. That sounds like a perfectly healthy kid with a few social difficulties having a bad day could get a diagnosis. The equivalent I can think of is a family doctor using a checklist to definitively diagnose epilepsy without an EEG or using a checklist to definitively diagnose a heart attack without ever having an EKG done.
I don't think my mother had ever heard of it when I was a child. I was born in 74.
When my daughter was diagnosed with PDD-NOS. She went to a specialty Pre-k and mainstreamed for Kindergarten.
She didn't struggle academically and I saw no reason to hold her back by associating her with Special Education. The way it was explained to me was that children are mainstreamed because they have been assessed as able to cope and keep up with the class. They are expected to meet the same criteria as the rest of the class so if she needed an advocate or was using her PDD as an excuse without trying to do better she could be reassessed and removed from regular classes if she could not meet requirements. She was diagnosed in 2001.
If she had trouble I had the original documents from her testing and early education but her trouble was all behavioral and could be solved by letting her work on it or telling her to sit and reflect and think. She had no trouble academically except 8th grade English. The teacher punished the students by making them hand in written sentences. My daughter liked writing the same sentence over and over so she chronically came to class unprepared so the teacher would assign her more and more pages to write: 1st offense 1 page, 2nd 2 pages, 3rd offense 3 pages...
she broke the teacher at 15 pages.
As a fetus she seemed claustrophobic. As an infant she preferred her own company and did not like to be held or touched. She toddled early and by one year she was underfoot all the time because she preferred sitting right behind of or in front of a person while she stacked things and organized things by color and size. She started skating when she was a little over a year old, her grandpa got a jumbo train set for her brother; she removed the tops of two cars, figured out how to stand in them and rolled up and down the hall holding on to the wall. She spent a lot of time playing in that hallway.
Her favorite toy of all time was a sit and spin, she would spin it so hard and so fast that it walked across the floor.
She didn't know how to play with dolls. She dressed them and undressed them. Around age 3 she started insisting on specific clothing items or herself. It wasn't until I was putting her dolls away one day that I realized her doll was wearing an outfit similar to hers.

I can't help feeling that I did the right thing for her. She works harder now to empathize with people or at least to allow them the right to feel, even if it bugs her. She still lives at home but she is otherwise supporting herself while saving money for her own place and her own things. She is very capable of making sound decisions when she has the time to really think and plan.
 

arouetta

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She didn't struggle academically and I saw no reason to hold her back by associating her with Special Education. The way it was explained to me was that children are mainstreamed because they have been assessed as able to cope and keep up with the class. They are expected to meet the same criteria as the rest of the class so if she needed an advocate or was using her PDD as an excuse without trying to do better she could be reassessed and removed from regular classes if she could not meet requirements.
In other words, they told you that if you asserted her legal rights it would cost them money and they didn't want to spend it. FAPE guarantees that your kid has to be super bad off to be taken out of a regular classroom. Those behavioral problems you cited, you and she were very lucky that the teachers worked with you on the telling her to think about it. There was no guarantee the teachers would do that unless you put an IEP in place, they could have been jerks about it. Other things would be a copy of notes due to fine motor weaknesses, certain seating in the classroom to minimize distractions, testing done in a way that allows for knowledge to be reflected adequately....basically meeting the same criteria but being given supports so that the student has an equal chance to meet the criteria as the non-disabled classmates.

I can't help feeling that I did the right thing for her. She works harder now to empathize with people or at least to allow them the right to feel, even if it bugs her. She still lives at home but she is otherwise supporting herself while saving money for her own place and her own things. She is very capable of making sound decisions when she has the time to really think and plan.
I am very glad that things worked out for you and her, and that what you did in her schooling worked. But bottom line is that you were lucky to have understanding teachers. Just imagine for a moment what your daughter's school years would have been like had the teachers done what they were legally allowed to do because of a lack of IEP and insisted on a cookie cutter approach to education and behavior.
 

hmckinney

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i got to feeling very anxious about madonna last night because she's had some health issues recently. she had lost weight and was having watery diarrhea and crusts on her eyes. i took her to the vet and found out she had hookworms and gingivitis. i felt like i was pretty much awful for letting her get both, and on top of that even with the medication she still has diarrhea..

on top of that, fuzzybutt has gingivitis too, but not the diarrhea/weight loss. so i'm kind of wondering what am i doing wrong??

so i called this morning and the receptionist was just the best. she calmed me down and told me i just needed to try and brush her teeth, and switch her to a gentler food, and it should be fine after that. she also helped me decide to switch her to revolution from frontline, because revolution protects against fleas AND hookworms. so i just gave her that today and i'm feeling a lot better.

i also looked online last night for reasons why she was pooping outside of the litter box, and found out that diarrhea makes their butts raw, and sometimes they start associating that pain with the litter box. and that is just so madonna. so i started putting some diaper rash cream on her and i'm gonna continue for a while until she starts pooping in the litter box again.

also who knew there was a flea med for dogs that lasted three months??? $58 for each, for both august and china. and then i don't have to worry about it for three months!!

on the downside, the gentler food is more expensive, and so is revolution. i'm a bit worried about the costs but i'm gonna try really hard to meet them every month.
 

dahli6

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In other words, they told you that if you asserted her legal rights it would cost them money and they didn't want to spend it. FAPE guarantees that your kid has to be super bad off to be taken out of a regular classroom. Those behavioral problems you cited, you and she were very lucky that the teachers worked with you on the telling her to think about it. There was no guarantee the teachers would do that unless you put an IEP in place, they could have been jerks about it. Other things would be a copy of notes due to fine motor weaknesses, certain seating in the classroom to minimize distractions, testing done in a way that allows for knowledge to be reflected adequately....basically meeting the same criteria but being given supports so that the student has an equal chance to meet the criteria as the non-disabled classmates.



I am very glad that things worked out for you and her, and that what you did in her schooling worked. But bottom line is that you were lucky to have understanding teachers. Just imagine for a moment what your daughter's school years would have been like had the teachers done what they were legally allowed to do because of a lack of IEP and insisted on a cookie cutter approach to education and behavior.
The teachers weren't part of it. I told her that at school her job was to go to class prepared, follow instructions and get through the day. Basically she kept to herself, she ignored classmates because they were noisy but if they were doing something that looked fun or interesting she got involved. Otherwise she studied.
The first grade teacher who tried to diagnose her with ADHD sent me weekly progress reports and we worked on her reading together but no other teachers knew she might need special attention. She was quiet, she did her work, didn't get into trouble and tested well.
My half brother is a high functioning Autistic. Diagnosed at 60% he fought his way out of Special Education because those teachers treated him like(not in his words because his words were offensive)a little kid. He was diagnosed when he was 3 and grew up in Special Education. He mainstreamed in the 9th grade on a probationary basis and was expected to meet the same deadlines as the other students in his class. No excuses. He squeaked by in 9th grade and had to repeat but his behavior went from sullen and aggressive to studious and content so they let him mainstream for the final 4 years.
 

LTS3

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You might be able to buy Revolution online for less than what the vet charges. Try DrsFosterandSmith.com and 1800PetMeds.com

I just saw at the local SPCA is offering pre-orders of their limited quanitity holiday cards. It's twelve cards in the pack, 4 designs, for $25. I think the cards are blank inside. Proceeds benefit the SPCA's programs. I'll buy those and support a good cause at the same time :agree:
 

arouetta

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No excuses.
Having a severe developmental disability is not an excuse, it's a reason.

The definition of "fair" according to many of the medical personnel I interacted with when my daughter was little was "meeting everyone's needs". In the workplace if you are disabled your employer must offer reasonable accommodations. Even if it costs them money. You have to meet the bulk of your job description, but those accommodations must be in place if they are needed for you to meet those expectations. Why do our kids deserve less?

It's sort of like the question of how do you proceed if you have three boxes and three people of different heights and a barrier blocking the view. Do you give everyone one box, even though the tallest person has no need for it and the shortest person still can't see when standing on a single box? Or do you give the shortest person two boxes and the tallest person none since that configuration means everyone can see over the barrier? Obviously the latter.

Like anyone with autism my daughter has communication issues. At first you'd never guess it, but when it comes to her telling you something important or you asking why something you told her was important didn't happen, then you realize she can't say what she is thinking, nor does she fully understand what you are saying. Is she thrown into the workplace without supports for impaired communication? No, a reasonable accommodation is talking to her in a way that she understands and asking the right questions to tease out what's really going on in her brain. Should she have gotten any less accommodations in school, just so she can meet the mythical goal of exceeding standards even though traditional learning is not designed for her? No, with the right accommodations you can help her learn and get out of her what she has learned, and that is far more accurate and far more reasonable to expect her to end up with the same knowledge as everyone else.

Sorry, anyone who is disabled is entitled to a life like everyone else, and finding a way around their challenges so they can live that life is the ethically right and legal thing to do. Withholding that support is wrong and calling a legitimate disability an excuse devalues all the hard work people with disabilities do to live life to the fullest.
 

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Lately I have a strange craving. Can of nacho cheese-no spices. So I searched all the grocery stores-not one can of nacho cheese...then at lunch today I stopped at the store to get oil for my truck-and saw these small containers of dips for chips-they had nacho cheese!! I bought it and ate it. So far I am pleased=a bit on the salty side for me. But at a local restaurant they have nacho nights on Thursdays and I loved the hot melted cheese-and been craving it ever since. So now to find a bigger can of it but I don't want that big industrial sized can. I don't know why I get these weird cravings..I have cut way back on my carbs and ate corn chips and they have less carbs than most other snacks I eat...so I didn't feel guilty as I ate a bunch of nacho cheese and scoops. LOL. only thing missing is sour cream...

The other night I got conqueso but I really don't like tomatoes in my cheese sauce so I didn't really like it but I dumped a ton of salsa, black olives and the cheese on the chips-nuked it on medium for 2 minutes=not a bad dinner...

Anyone here get weird food cravings? Now I will be fine for a bit. I will poke around on Amazon and probably order a can of cheese lol. I know I can make my own-but the canned stuff is fine for me.
 

foxxycat

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and I agree with arouetta. As someone who is a high functioning Aspie=I didn't have the support I needed until my mother pushed buttons to get the school to do something. I was very smart. In fact I was reading by 4. I could add and subtract by 6. I was bored in school and got in trouble for "reading" too much. I used to bring a book and put it in the middle of my text book in 4th to 12th grade and read the book while listening to the lecture-90% of the time same damn stuff I heard over and over. Back then I didn't want to call attention to myself.

So I found school a waste of time. I often jumped ahead and did the next 4 chapters before they were due. I was put into an IEP class and hated it. The teachers talked to me like a baby. You know what my issue was?? Too EMOTIONAL. I hated the kids. I hated the whole thing. I hated kids talking to me-because I have hearing auditory issues and sometimes takes me longer to come up with answers..when the internet came around in the 1990s=I was in HEAVEN. NOW I could COMMUNICATE!

Before I took jobs in the middle of the night and didn't want interaction with people-because I am STILL too emotional. But now the internet unlocked a way for me to meet up with other like minded folks. And now I have the information to work with and deal with my issues.

If school in the 1980s and 1990s utilized more things the students would have gone even farther. I was jealous of home schooled kids=they didn't have to deal with the social interactions that I dreaded. My favorite class was gym class when I could take my frustrations out in sports and art class=I worked with my hands and didn't have to deal with face to face communication..they gave me instructions to create work. And I did. It was the happiest I could be with what I had. I wish I had a real home life like most kids-but I didn't. My parents did the best they could with what they had.

High school was so much better than the other grades. I didn't like the IEP because kids called me hateful junk which only got me in trouble because I had a bad habit of punching people when they ticked me off. Yeah I was one of those. Angry mad all the time. Couldn't wait to be alone. Wore baggy ugly clothes. Looking back-I had a few good teachers but most of them didn't know what to do with me. I just mucked along the best I could.

In fact the one thing I loved the most- school dances-music. I would dance the entire 4 hours and the lights were dimmed and I didn't have to talk. Just sing and dance. I never had many friends and I often danced by myself..I was the freak on the dance floor but seriously when the music is going=it takes over and I move with it...it's like a totally new world..music is what made my life worth living. At least with music blaring I don't have to talk or listen-just dance and enjoy the music.

As far as disabilities I think we can do better. In fact I KNOW we can.
 

Willowy

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Lately I have a strange craving. Can of nacho cheese-no spices
I haven't had it in a while, but I think Cheez Whiz is similar to the canned cheese. It's in a jar not a can but I'm pretty sure it's the same stuff. The only can I've seen is the big buffet-size can. I do get cravings for gas station nachos now and then.
 

arouetta

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Fritos Mild Cheddar Cheese Dip is exactly what you are wanting I bet. Absolutely no spice, it's just tons of gooey cheese delight for tortilla chips.
 

foxxycat

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that's what I picked up at the gas station. Some reason not as good as the nachos at the movie theater..or wherever they serve them..the grill I used to work at had it and man I ate a ton of it. on chips. On chicken fingers. Potatoes..whatever I was eating I had to put it on..
 
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