I love my son to pieces but if its not one thing is another thats wrong with him. Seems like forever now my middle son (cleft, GHD) has had low iron counts. And for years I have wondered about Celiac disease but all the doctors said we would know just by looking at his stools. So we just let it go that maybe he did not have an issue. We recently I had a talk with his doctor about 1) his iron levels and 2) the fact that we have such a hard time getting him to eat much. Well finally this doctor said lets run some blood tests and check where things are. One of those tests was a Celiac Panel. Well the results are in today..He said he shows somewhat of a positive. He tried to explain the results to me but I don't know if I totally get it. He said on the test up to a count of 11 is considered normal but his was a 15 or 16. So he wants me to cut all things will wheat in it for 6 mths then we will re-test to see where things stand. He said every so often he can have something with a little wheat in it but not very often.
So I just looked in my cabinet and 99% of the things I have have wheat in it. So I have to go to the store tonight and try and find things will no wheat in it. And thats a scary thought of how little he may be eating aside from meat and veggies. No sandwiches no gravies a lot of cereal has wheat etc. And I am not about to make 2 different meals so everyone here is gonna have to change their eating habits to accommodate this. And that will be hard on all of us.
But all this makes sense why he won't eat a lot of stuff anymore it probably hurts his stomach. Plus what about school?
Anyone here that has this that can give me some advice or support on this.
So I just looked in my cabinet and 99% of the things I have have wheat in it. So I have to go to the store tonight and try and find things will no wheat in it. And thats a scary thought of how little he may be eating aside from meat and veggies. No sandwiches no gravies a lot of cereal has wheat etc. And I am not about to make 2 different meals so everyone here is gonna have to change their eating habits to accommodate this. And that will be hard on all of us.
But all this makes sense why he won't eat a lot of stuff anymore it probably hurts his stomach. Plus what about school?
Anyone here that has this that can give me some advice or support on this.